Política de Privacidad

Acceso de los usuarios al sitio web

– Las páginas de la Fundación Síndrome de Dravet pueden ser visitadas libremente por los usuarios exceptuando aquellas que se incluyan en áreas cerradas o de suscripción.

– El usuario se compromete a utilizar las páginas de la Fundación Síndrome de Dravet de conformidad con las leyes españolas y europeas aplicables, con el presente Aviso Legal, con las Condiciones Particulares de ciertos Servicios y demás avisos, reglamentos de uso e instrucciones puestos en su conocimiento, así como con la moral y las buenas costumbres generalmente aceptadas y con el orden público.

Limitación de la responsabilidad 

– Este sitio web tiene por objeto principal informar a los pacientes, médicos e investigadores, por lo que los contenidos del mismo son simplemente de carácter informativo y puramente orientativos, no pudiendo ser considerados como asesoramiento legal o médico.

– La Fundación Síndrome de Dravet declina cualquier responsabilidad respecto de la información que se encuentre fuera de esta página o de su control y/o de la que no sea autor, no siendo responsable, en particular, de la actualización, corrección y/o exactitud de los contenidos a los que tenga acceso el visitante a través de esta página web así como de su legalidad y/o idoneidad.

-Tampoco puede responsabilizarse a la Fundación Síndrome de Dravet de ningún tipo de daño directa o indirectamente relacionado con la utilización y/o contenido de los enlaces incluidos en esta página. La incorporación de un enlace en esta página no puede considerarse una recomendación de la Fundación Síndrome de Dravet para que procedan los visitantes a utilizarlos; la decisión de utilizarlos queda sujeta a la voluntad de estos últimos.

– En todo caso, y bajo ninguna circunstancia, ninguna información directa o indirectamente accesible a través de esta página web podrá ser considerada un consejo médico o prescripción facultativa, declinando la Fundación Síndrome de Dravet toda responsabilidad por cualquier tipo de consecuencias directa o indirectamente relacionadas con las acciones u omisiones que pueda tener el visitante en función de la interpretación de estas informaciones.

– La información contenida en esta web puede no ser correcta, pese a los esfuerzos realizados para velar por su veracidad y actualización. En consecuencia, la Fundación Síndrome de Dravet no se responsabiliza de los errores contenidos, ni por los daños o perjuicios derivados de su utilización.

– La Fundación Síndrome de Dravet no se responsabiliza de las posibles diferencias que puedan existir entre los documentos originales contenidos en publicaciones oficiales y su versión electrónica cargada en este web, al tener exclusivamente, estas últimas, carácter informativo.

– La Fundación Síndrome de Dravet se reserva el derecho a modificar, actualizar o suprimir cualquiera de los contenidos de la web sin previa notificación.

– La Fundación Síndrome de Dravet no se responsabiliza de los daños y perjuicios ocasionados en el sistema de los usuarios del sitio web, al no poder garantizar la inexistencia de virus u otros elementos lesivos en sus contenidos.

Navegación anónima a través de la web

– La Fundación Síndrome de Dravet, entidad titular del sitio web dravetfoundation.eu sólo obtiene y conserva acerca de los visitantes de nuestra web la información establecida en el formato común de archivo de registro de NCSA.

– La información obtenida es totalmente anónima y en ningún caso puede ser asociada a un usuario concreto e identificado, a no ser que se acceda a partes de la web dónde se requiera la autentificación.

Tratamiento de datos de carácter personal

– La Fundación Síndrome de Dravet es el titular de la base de datos generada con los datos de carácter personal suministrados por los usuarios en el web site dravetfoundation.eu cuando los usuarios provean dichos datos.

– El usuario autoriza el tratamiento automatizado de los datos personales suministrados para la prestación de servicios pactados, así como para las convocatorias, solicitudes de becas, ofertas y contrataciones de otros productos y servicios de la Fundación Síndrome de Dravet y, eventualmente, de sus sociedades.

– Como usuario que provee imágenes y fotografías a la Fundación Síndrome de Dravet a través de los medios previstos en esta página web, AUTORIZA a la Fundación Síndrome de Dravet al uso de los datos personales facilitados (imágenes, videos, etc) con fines promocionales/publicitarios en apoyo de la difusión del Síndrome de Dravet y a que indistintamente pueda utilizar todos estos elementos audiovisuales, o partes de los mismos, en los que intervengo tanto yo como aquellas otras personas que aparezcan en las imágenes o fotografías que provea. Asimismo certifico que poseo la autorización de las terceras personas que aparezcan en las mismas, para la cesión del uso de sus datos personales (imágenes, vídeos, fotografías, etc.) con esos mismos fines promocionales/publicitarios. La autorización no tiene ámbito geográfico determinado. Asimismo, se refiere a la totalidad de usos para los que puedan servir con el fin de apoyar la difusión del Síndrome de Dravet y la promoción de su investigación, utilizando los medios técnicos conocidos en la actualidad y los que pudieran desarrollarse en el futuro, y para cualquier aplicación, sin contraprestación económica. Todo ello con la única salvedad y limitación de aquellas que pudieran atentar al derecho al honor en los términos previstos en la Ley Orgánica 1/85, de 5 de Mayo, de Protección Civil al Derecho al Honor, la Intimidad Personal y familiar y a la Propia Imagen. Esta autorización no fija ningún límite de tiempo para su concesión ni para la explotación los trabajos, por lo que la autorización se considera concedida por un plazo de tiempo ilimitado.

– De igual manera, como asistente a eventos de la Fundación Síndrome de Dravet que requieran inscripción a través de esta página web, al aceptar las políticas de privacidad AUTORIZA a la Fundación Síndrome de Dravet a la toma y uso de imágenes, vídeos, etc., con fines promocionales/publicitarios en apoyo de la difusión del Síndrome de Dravet y a que indistintamente se pueda utiliza todos estos elementos audiovisuales, o partes de los mismos, en los que intervenga tanto usted como aquellas otras personas que aparezcan en las imágenes o fotografías que provea. Asimismo certifica que posee la autorización de las terceras personas que usted haya inscrito a los eventos de la Fundación Síndrome de Dravet, para la cesión del uso de sus datos personales (imágenes, vídeos, fotografías, etc.) con esos mismos fines promocionales/publicitarios. La autorización no tiene ámbito geográfico determinado. Asimismo, se refiere a la totalidad de usos para los que puedan servir con el fin de apoyar la difusión del Síndrome de Dravet y la promoción de su investigación, utilizando los medios técnicos conocidos en la actualidad y los que pudieran desarrollarse en el futuro, y para cualquier aplicación, sin contraprestación económica. Todo ello con la única salvedad y limitación de aquellas que pudieran atentar al derecho al honor en los términos previstos en la Ley Orgánica 1/85, de 5 de Mayo, de Protección Civil al Derecho al Honor, la Intimidad Personal y familiar y a la Propia Imagen. Esta autorización no fija ningún límite de tiempo para su concesión ni para la explotación los trabajos, por lo que la autorización se considera concedida por un plazo de tiempo ilimitado.

– La información contenida en la citada base de datos es usada tanto para la correcta identificación de los usuarios que solicitan servicios personalizados en dravetfoundation.eu, como para la realización de estudios estadísticos de los usuarios registrados de dravetfoundation.eu que permitan diseñar mejoras en los servicios prestados, llevar a cabo tareas básicas de administración y poder comunicar incidencias, ofertas y novedades a los usuarios registrados vía correo electrónico.

– La información personal recabada de los usuarios registrados es almacenada en la base a datos propiedad de dravetfoundation.eu que asume las medidas de índole técnica, organizativa y de seguridad que garanticen la confidencialidad e integridad de la información de acuerdo con lo establecido en la normativa de protección de datos, Reglamento (UE) 2016/679, del Parlamento Europeo y del Consejo, de 27 de abril de 2016, relativo a las personas físicas en lo que respecta al tratamiento de datos personales y a la libre circulación de estos datos (RGPD), la ley Orgánica 3/2018, de 5 de diciembre, de protección de datos y garantía de los derechos digitales y otra normativa española vigente, y demás legislación aplicable.

– El usuario responderá, en cualquier caso, de la veracidad de los datos facilitados, reservándose dravetfoundation.eu el derecho a excluir de los servicios registrados a todo usuario que haya facilitado datos falsos, sin prejuicio de las demás acciones legales.

– La normativa de protección de datos, Reglamento (UE) 2016/679, del Parlamento Europeo y del Consejo, de 27 de abril de 2016, relativo a las personas físicas en lo que respecta al tratamiento de datos personales y a la libre circulación de estos datos (RGPD), la ley Orgánica 3/2018, de 5 de diciembre, de protección de datos y garantía de los derechos digitales y otra normativa española vigente, garantiza su derecho a ser informado y a solicitar el consentimiento para el tratamiento de sus datos personales.

– Como usuario de esta web y de aquellos casos en los que nos provea informacion personal le informamos que recabamos sus datos y solicitamos su consentimiento para poder tratarlos con ese fin. Con la aceptación de esta cláusula Vd. nos da su consentimiento para ello, tal y como dispone el artículo 6.1. a) RGPD.
Se le informa que los mismos serán cedidos en los casos que exista una obligación legal, según lo establecido en el artículo 6.1.c RGPD.
Sus datos serán incorporados al Sistema de Protección de Datos de Fundación Síndrome de Dravet con CIF G-86079852, y domicilio en Calle Toledo, 46, Planta 1, 28005 – Madrid. Serán conservados durante el tiempo legal establecido para cada una de las obligaciones legales que deriven de los tratamientos llevados a cabo.
Se le informa de la posibilidad de retirar su consentimiento en cualquier momento. Si bien, esta retirada no afectará a los tratamientos anteriores a la misma. Asimismo, se le informa de que puede ejercitar sus derechos de acceso a los datos, su rectificación, supresión, oposición, limitación de su tratamiento o portabilidad de los mismos según lo establecido en el RGPD. Podrá ejercitar estos derechos, o revocar el consentimiento, por escrito en la dirección postal indicada o en correo a [email protected], junto a copia de su DNI.
Puede contactar con nuestro Delegado de Protección de Datos (DPD) enviando un correo electrónica a [email protected]
En el caso de que lo considere procedente, puede presentar reclamación ante Agencia Española de Protección de Datos, como Autoridad de Control. Con carácter previo a la posible reclamación ante la AEPD, puede dirigirse a nuestro DPD y le daremos satisfacción a su reclamación.

¡Haz tu donación!

Tu aportación se destinará a ayudar a nuestros guerreros y sus familias en su lucha contra el síndrome de Dravet, para conseguir que no pierdan nunca la sonrisa.

Esperanza

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TERMS & CONDITIONS

The Dravet Syndrome Conference 2023 is organised by Dravet Syndrome Foundation Spain, whose registered office is located at Calle Doctor Fleming, 30, 28036 Madrid, Spain.

The conference shall take place at the Official College of Nursing of Madrid, at Avenida de Menéndez Pelayo, 93, 28007 Madrid, Spain, on Thursday 23rd of March 2023. Attendance to this conference is free of charge, but mandatory for organisational reasons.

Participants must register online at www.dravetconference.com. Upon registration, each participant will receive an electronic confirmation by email. On-site registration will not be be possible. If a participant has not received the official email registration confirmation within 3 days, they must contact the conference secretariat at [email protected].

The conference registration includes: Attendance to all sessions, oral and visual presentations, all coffee and lunch breaks, and conference documentation with all information about the event. The registration does not include travel and accommodation costs or any other personal expenses.

Admittance to the conference without registration cannot be granted.

Conference Attendance
Upon arrival at the Official College of Nursing of Madrid the day of the event, all participants have to check-in at the onsite Conference Registration Desk. The desk will open on 23rd of March at 8:30 a.m. Upon registration onsite, the conference team will provide participants with information about the event and a badge, which should be worn visibly at all times. The personalised badge authorises participants to attend all conference sessions, and lunch and coffee breaks.

Cancellation Policy
Dravet Syndrome Foundation Spain reserves the right to cancel any registration forthwith and without liability on its part in the event of any damage to, or destruction of the venue by fire, shortage of labour, strikes, industrial unrest, public health measures, or any other cause beyond the control of the Dravet Syndrome Foundation Spain, which shall prevent it from performing its obligations. In these circumstances, every effort will be made to find an alternative format/venue or propose a new date for the conference. Should the conference be cancelled for any reason, airfares, hotels, or other costs incurred by the participants are not reimbursed by the Dravet Syndrome Foundation Spain.

Any participant is allowed to cancel his/her registration but must notify this to the conference organisers by e-mail at [email protected] within a minimum of 10 days prior the event. Failure to attend the event without prior written notification by email may incur a no-show fee, which shall cover individual organizational, material and catering costs.

Name Change
All registrations are only valid for the respective person mentioned in the form. A registered participant unable to attend the conference may nominate (free of charge) a substitute participant by notifying the conference organisers by email at [email protected] before 16th of March 2023. The procedure allows giving the last name, first name, and email address of the new participant.

Personal Data
Upon registration, the participant authorises Dravet Syndrome Foundation Spain to use their personal data stated above to inform the participant of any further conferences, events, or information concerning the conference and Dravet Syndrome Foundation Spain’s activities. The conference booklet online will only contain authors, titles, and affiliations of submitted abstracts, but no full abstract texts. The conference printed booklet will contain full abstract texts from all participants. Conference certificates will be sent to the participants as a PDF document upon request at [email protected]. Only the name & affiliation will be stated in the certificate, not the email addresses of the participants.

Information is collected by an automated computer system that manages registrations. Security and confidentiality are guaranteed by state-of-the-art technical tools. However, Dravet Syndrome Foundation Spain declines any responsibility concerning data security transmitted through the internet.

Photography
The conference is held in public; therefore, we do not ban participants, exhibitors, partners and other companies from taking photographs of conference activities and participants, and share it via social media. By participating in the conference, you approve that general pictures will be taken and used for our Social Media output, our websites and other communication purposes. You hereby waive any right to oppose, and expressly authorise the organiser to make them available on the Internet or as it may seem fit. Author’s presentation slides shall not be photographed by any conference participant. 

Disclaimer
The conference organiser cannot be held responsible for any loss, injury or damage to any property, whatever the cause may be. Should, for any reason outside the organiser’s control (e.g., political or economic circumstances or a case of ‘force majeure’), the venue or speakers change, or the event be cancelled, the organiser will endeavour to reschedule, but shall not be held responsible for any costs, damages or expenses incurred by the participants. If for any reason the organiser decides to make material changes to this conference, the organiser is not responsible for airfares, hotels or other costs incurred by the participants. The participant takes part in the conference, all tours, and trips at his own risk.

Copyright
The participant is allowed to use the conference documentation exclusively for his/her personal needs.

TERMS & CONDITIONS

The European Dravet Syndrome Advanced Therapies (EDSAT) Meeting 2023 is organised by Dravet Syndrome Foundation Spain, whose registered office is located at Calle Doctor Fleming, 30, 28036 Madrid, Spain.

The conference shall take place at the Official College of Nursing of Madrid, at Avenida de Menéndez Pelayo, 93, 28007 Madrid, Spain, on Friday 24th of March 2023. Attendance to this conference is free of charge, but mandatory for organisational reasons.

Participants must register online at www.dravetconference.com. Upon registration, each participant will receive an electronic confirmation by email. On-site registration will not be be possible. If a participant has not received the official email registration confirmation within 3 days, they must contact the conference secretariat at [email protected].

The conference registration includes: Attendance to all sessions, oral and visual presentations, all coffee and lunch breaks, and conference documentation with all information about the event. The registration does not include travel and accommodation costs or any other personal expenses.

Admittance to the conference without registration cannot be granted.

Conference Attendance
Upon arrival at the Official College of Nursing of Madrid the day of the event, all participants have to check-in at the onsite Conference Registration Desk. The desk will open on 24th of March at 8:30 a.m. Upon registration onsite, the conference team will provide participants with information about the event and a badge, which should be worn visibly at all times. The personalised badge authorises participants to attend all conference sessions, and lunch and coffee breaks.

Cancellation Policy
Dravet Syndrome Foundation Spain reserves the right to cancel any registration forthwith and without liability on its part in the event of any damage to, or destruction of the venue by fire, shortage of labour, strikes, industrial unrest, public health measures, or any other cause beyond the control of the Dravet Syndrome Foundation Spain, which shall prevent it from performing its obligations. In these circumstances, every effort will be made to find an alternative format/venue or propose a new date for the conference. Should the conference be cancelled for any reason, airfares, hotels, or other costs incurred by the participants are not reimbursed by the Dravet Syndrome Foundation Spain.

Any participant is allowed to cancel his/her registration but must notify this to the conference organisers by e-mail at [email protected] within a minimum of 10 days prior the event. Failure to attend the event without prior written notification
by email may incur a no-show fee, which shall cover individual organizational, material and catering costs.

Name Change
All registrations are only valid for the respective person mentioned in the form. A registered participant unable to attend the conference may nominate (free of charge) a substitute participant by notifying the conference organisers by email at [email protected] before 17th of March 2023. The procedure allows giving the last name, first name, and email address of the new participant.

Personal Data
Upon registration, the participant authorises Dravet Syndrome Foundation Spain to use their personal data stated above to inform the participant of any further conferences, events, or information concerning the conference and Dravet Syndrome Foundation Spain’s activities. The conference booklet online will only contain authors, titles, and affiliations of submitted abstracts, but no full abstract texts. The conference printed booklet will contain full abstract texts from all participants. Conference certificates will be sent to the participants as a PDF document upon request at [email protected]. Only the name & affiliation will be stated in the certificate, not the email addresses of the participants.

Information is collected by an automated computer system that manages registrations. Security and confidentiality are guaranteed by state-of-the-art technical tools. However, Dravet Syndrome Foundation Spain declines any responsibility concerning data security transmitted through the internet.

Photography
The conference is held in public; therefore, we do not ban participants, exhibitors, partners and other companies from taking photographs of conference activities and participants, and share it via social media. By participating in the conference, you approve that general pictures will be taken and used for our Social Media output, our websites and other communication purposes. You hereby waive any right to oppose, and expressly authorise the organiser to make them available on the Internet or as it may seem fit. Author’s presentation slides shall not be photographed by any conference participant.

Disclaimer
The conference organiser cannot be held responsible for any loss, injury or damage to any property, whatever the cause may be. Should, for any reason outside the organiser’s control (e.g., political or economic circumstances or a case of ‘force majeure’), the venue or speakers change, or the event be cancelled, the organiser will endeavour to reschedule, but shall not be held responsible for any costs, damages or expenses incurred by the participants. If for any reason the organiser decides to make material changes to this conference, the organiser is not responsible for airfares, hotels or other costs incurred by the participants. The participant takes part in the conference, all tours, and trips at his own risk.

Copyright
The participant is allowed to use the conference documentation exclusively for his/her personal needs.

TERMS & CONDITIONS

The European Dravet Syndrome Advanced Therapies (EDSAT) Meeting 2022 is organised by Dravet Syndrome Foundation Spain, whose registered office is located at Calle Doctor Fleming, 30, 28036 Madrid, Spain.

The conference shall take place at the Illustrious Official College of Physicians of Madrid, at Calle de Santa Isabel, 51, 28012 Madrid, Spain, on Friday 1st of April 2022. Attendance to this conference is free of charge, but mandatory for organisational reasons. Participants must register online at www.dravetconference.com. Upon registration, each participant will receive an electronic confirmation by email. On-site registration will not be be possible. If a participant has not received the official email registration confirmation within 3 days, they must contact the conference secretariat at [email protected].

The conference registration includes: Attendance to all sessions, oral and visual presentations, all coffee and lunch breaks, and conference documentation with all information about the event. The registration does not comprise travelling and accommodation costs or any other personal expenses.

Admittance to the workshop without registration cannot be granted.

Conference Attendance
Upon arrival at the Illustrious Official College of Physicians of Madrid the day of the event, all participants have to register at the onsite Conference Registration Desk. The desk will open on 1st of April at 8:30 a.m. Upon registration onsite, the conference team will provide participants with information about the event and a badge, which should be worn visibly at all times. The personalised badge authorises participants to attend all conference sessions, and lunch and coffee breaks.

Cancellation Policy
Dravet Syndrome Foundation Spain reserves the right to cancel any registration forthwith and without liability on its part in the event of any damage to, or destruction of the venue by fire, shortage of labour, strikes, industrial unrest, public health measures, or any other cause beyond the control of the Dravet Syndrome Foundation Spain, which shall prevent it from performing its obligations. In these circumstances, every effort will be made to find an alternative format/venue or propose a new date for the conference. Should the conference be cancelled for any reason, airfares, hotels, or other costs incurred by the participants are not reimbursed by the Dravet Syndrome Foundation Spain.

Any participant is allowed to cancel his/her registration but must notify this to the conference organisers by e-mail at [email protected] within a minimum of 10 days
prior the event. Failure to attend the event without prior written notification
by email may incur a no-show fee, which shall cover individual organizational,
material and catering costs.

Name Change
All registrations are only valid for the respective person mentioned in the form. A registered participant unable to attend the conference may nominate (free of charge) a substitute participant by notifying the conference organisers by email at [email protected] before 24th of March 2022. The procedure allows giving the last name, first name, and email address of the new participant.

Personal Data
Upon registration, the participant authorises Dravet Syndrome Foundation Spain to use their personal data stated above to inform the participant of any further conferences, events, or information concerning the conference and Dravet Syndrome Foundation Spain’s activities. The conference booklet online will only contain authors, titles, and affiliations of submitted abstracts, but no full abstract texts. The conference printed booklet will contain full abstract texts from all participants. Conference certificates will be sent to the participants as a PDF document upon request at [email protected]. Only the name & affiliation will be stated in the certificate, not the email addresses of the participants.

Information is collected by an automated computer system that manages registrations. Security and confidentiality are guaranteed by state-of-the-art technical tools. However, Dravet Syndrome Foundation Spain declines any responsibility concerning data security transmitted through the internet.

Photography
The conference is held in public; therefore, we do not ban participants, exhibitors, partners and other companies from taking photographs of conference activities and participants, and share it via social media. By participating in the conference, you approve that general pictures will be taken and used for our Social Media output, our websites and other communication purposes. You hereby waive any right to oppose, and expressly authorise the organiser to make them available on the Internet or as it may seem fit. Author’s presentation slides shall not be photographed by any conference participant.

Disclaimer
The conference organiser cannot be held responsible for any loss, injury or damage to any property, whatever the cause may be. Should, for any reason outside the organiser’s control (e.g., political or economic circumstances or a case of ‘force majeure’), the venue or speakers change, or the event be cancelled, the organiser will endeavour to reschedule, but shall not be held responsible for any costs, damages or expenses incurred by the participants. If for any reason the organiser decides to make material changes to this conference, the organiser is not responsible for airfares, hotels or other costs incurred by the participants. The participant takes part in the conference, all tours, and trips at his own risk.

Copyright
The participant is allowed to use the conference documentation exclusively for his/her personal needs.

TERMS & CONDITIONS

The Dravet Syndrome Conference 2022 is organised by Dravet Syndrome Foundation Spain, whose registered office is located at Calle Doctor Fleming, 30, 28036 Madrid, Spain.

The conference shall take place at the Illustrious Official College of Physicians of Madrid, at Calle de Santa Isabel, 51, 28012 Madrid, Spain, on Thursday 31st of March 2022. Attendance to this conference is free of charge, but mandatory for organisational reasons. Participants must register online at www.dravetconference.com. Upon registration, each participant will receive an electronic confirmation by email. On-site registration will not be be possible. If a participant has not received the official email registration confirmation within 3 days, they must contact the conference secretariat at [email protected].

The conference registration includes: Attendance to all sessions, oral and visual presentations, all coffee and lunch breaks, and conference documentation with all information about the event. The registration does not include travel and accommodation costs or any other personal expenses.

Admittance to the conference without registration cannot be granted.

Conference Attendance
Upon arrival at the Illustrious Official College of Physicians of Madrid the day of the event, all participants have to register at the onsite Conference Registration Desk. The desk will open on 31st of March at 8:30 a.m. Upon registration onsite, the conference team will provide participants with information about the event and a badge, which should be worn visibly at all times. The personalised badge authorises participants to attend all conference sessions, and lunch and coffee breaks. 

Cancellation Policy
Dravet Syndrome Foundation Spain reserves the right to cancel any registration forthwith and without liability on its part in the event of any damage to, or destruction of the venue by fire, shortage of labour, strikes, industrial unrest, public health measures, or any other cause beyond the control of the Dravet Syndrome Foundation Spain, which shall prevent it from performing its obligations. In these circumstances, every effort will be made to find an alternative format/venue or propose a new date for the conference. Should the conference be cancelled for any reason, airfares, hotels, or other costs incurred by the participants are not reimbursed by the Dravet Syndrome Foundation Spain.

Any participant is allowed to cancel his/her registration but must notify this to the conference organisers by e-mail at [email protected] within a minimum of 10 days prior the event. Failure to attend the event without prior written notification by email may incur a no-show fee, which shall cover individual organizational, material and catering costs.

Name Change
All registrations are only valid for the respective person mentioned in the form. A registered participant unable to attend the conference may nominate (free of charge) a substitute participant by notifying the conference organisers by email at [email protected] before 24th of March 2022. The procedure allows giving the last name, first name, and email address of the new participant.

Personal Data
Upon registration, the participant authorises Dravet Syndrome Foundation Spain to use their personal data stated above to inform the participant of any further conferences, events, or information concerning the conference and Dravet Syndrome Foundation Spain’s activities. The conference booklet online will only contain authors, titles, and affiliations of submitted abstracts, but no full abstract texts. The conference printed booklet will contain full abstract texts from all participants. Conference certificates will be sent to the participants as a PDF document upon request at [email protected]. Only the name & affiliation will be stated in the certificate, not the email addresses of the participants.

Information is collected by an automated computer system that manages registrations. Security and confidentiality are guaranteed by state-of-the-art technical tools. However, Dravet Syndrome Foundation Spain declines any responsibility concerning data security transmitted through the internet.

Photography
The conference is held in public; therefore, we do not ban participants, exhibitors, partners and other companies from taking photographs of conference activities and participants, and share it via social media. By participating in the conference, you approve that general pictures will be taken and used for our Social Media output, our websites and other communication purposes. You hereby waive any right to oppose, and expressly authorise the organiser to make them available on the Internet or as it may seem fit. Author’s presentation slides shall not be photographed by any conference participant. 

Disclaimer
The conference organiser cannot be held responsible for any loss, injury or damage to any property, whatever the cause may be. Should, for any reason outside the organiser’s control (e.g., political or economic circumstances or a case of ‘force majeure’), the venue or speakers change, or the event be cancelled, the organiser will endeavour to reschedule, but shall not be held responsible for any costs, damages or expenses incurred by the participants. If for any reason the organiser decides to make material changes to this conference, the organiser is not responsible for airfares, hotels or other costs incurred by the participants. The participant takes part in the conference, all tours, and trips at his own risk.

Copyright
The participant is allowed to use the conference documentation exclusively for his/her personal needs.