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The Future of Refractory Epilepsy Syndromes

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THE FUTURE OF REFRACTORY EPILEPSY SYNDROMES, European Meeting

Tuesday Jun 23, 2015

Vincci Soho Hotel

Calle del Prado, 18, 28014 Madrid

Organized by the Dravet Syndrome Foundation, Spain

 

Meeting Description

The Future of Epilepsy Syndromes conference will look into the key issues, challenges and priorities to improve the care of patients with refractory epilepsy syndromes in the next 10 years. A panel of international experts and patient groups will provide their view on the current and future treatments for the treatment of seizures in refractory epilepsy, what is known and what needs to be developed for threading the cognitive and behavioural comorbidities associated with these syndromes, and look into the future to address regulatory and patient identification challenges and the role of patient organizations. The meeting will conclude with an open debate on building that future where all attendees will be invited to contribute.

Future of Refractory Epilepsy Syndrome meeting program: Meeting Program

 

Attendance

Participation in the Future of Refractory Epilepsy Syndromes meeting is strictly by invitation. The presentations will be recorded and the videos will be made available through this website after the meeting.

For questions, contact the Program Director: Ana Mingorance, PhD

 

Spanish Información para pacientes

The Future of Refractory Epilepsy Syndromes es un encuentro privado al cual se accede solo por invitación.

La audiencia estará formada por neurólogos, investigadores y representantes de las principales asociaciones de Síndrome de Dravet europeas, además de representantes de otras asociaciones de síndromes afines. Estos neurólogos y asociaciones comunicarán a su vez a sus pacientes los resultados de la reunión.

La reunión es en inglés y puramente informativa. El hecho de asistir no implica compromiso alguno por parte de la Fundación Síndrome de Dravet en España o la empresa GW Pharma de cara a futuros ensayos clínicos.

Las ponencias se grabarán en video y serán publicadas en este mismo sitio web posteriormente a la reunión. Además, La Fundación Síndrome de Dravet en España compartirá con sus familias afiliadas los resultados de la reunión y estará disponible para dudas y preguntas.

Videos

Update on Epidiolex clinical trials in pediatric epilepsy

Stephen Wright

Update on CBDV clinical trials in refractory epilepsy

Colin Stott

Epilepsy Pipeline in 10 years

Catherine Chiron
The presentation “Epilepsy Pipeline in 10 years” by Dr Catherine Chiron has not been recorded following the wishes of the speaker.

Patient groups interested in learning about the content of Dr Chiron talk please contact Ana Mingorance.

ana.mingorance@dravetfoundation.eu

Redefining epileptic encephalopathies

Pierre-Pascal Lenck-Santini

Cognition and behavior in refractory epilepsy syndromes: characterization and biomarkers

Rocio Sanchez-Carpintero

Understanding and treating refractory epilepsy syndromes: preclinical challenges

Benjamin Whalley

Regulatory issues

Josep Torrent-Farnell

Regulatory issues

Fernando de Andrés

Finding patients: registries and diagnosis

Julian Isla

Finding patients: registries and diagnosis

Isabella Brambilla

Impatient patient organizations as partners

Ana Mingorance

Nuestra fundación está auditada por